Tag: genetic testing

Angelina

Alright, by now everybody and his or her dog has heard the latest about Angelina Jolie, right?

Only a fraction of breast cancers result from an inherited gene mutation. Those with a defect in BRCA1 have a 65 percent risk of getting it, on average.

Once I knew that this was my reality, I decided to be proactive and to minimize the risk as much I could. I made a decision to have a preventive double mastectomy. I started with the breasts, as my risk of breast cancer is higher than my risk of ovarian cancer, and the surgery is more complex.

On April 27, I finished the three months of medical procedures that the mastectomies involved.

Needless to say, this has sparked much online discussion. Here’s a featured item on BlogHer by a woman considering the same decision. Here’s one from a Professor of Pediatrics (is he also a doctor of medicine? probably?) who points out that this sort of surgery comes with risks and without promises of a cancer free life.

And do you know what I don’t see mentioned much? Time and money.

Most of us don’t have the ability to be in and out of surgery and recovery for three months — more if there are any sort of complications. Heck, many of us can’t really afford to take 2 days off from work (or school, or taking care of family…). Ms. Jolie is truly blessed that not only could she free up her busy schedule to do this, but also that her loving husband Mr. Pitt was able to be there by her side, and further that they were able to arrange adequate childcare for their six children — ranging in age from 5 to 12 — during this stressful time.

Another area where Ms. Jolie is truly blessed is money. Many women can’t justify spending the “approximately $3000” to see if she has the 1 in 100 chance of ridiculously higher breast cancer risk. In a time and country where it can be difficult to figure out exactly how much any given hospital service is going to cost, she didn’t have to worry about it. She knew that the money was in the bank. Perhaps she did get her insurance company to pay for it; after all, this has to be cheaper than cancer treatments followed by reconstructive surgery!

Some people simply have more options than others.

In Closing: transparency and accountability, and why big brother won’t work; it wouldn’t be a bad idea to retire these; austerity, unemployment, and job creation (for the record, I am currently not in the workforce and not officially “unemployed,” more on that later in the week); mobility; interesting point; the law of supply and demand (and why we desperately need a public option).

Reform. For Freedom.

We have officially gotten to the point where corporations control us.

They control how much money we are allowed to make. They control our finances on the national, international, and personal level — badly. They control our health care in a system that is doomed to collapse under the weight of its own expense real soon now. Worst of all, they play by whatever rules they like while squeezing ordinary people to desperation. Now they have a green light to even more openly control our government.

And unless this worthless Congress remembers that the one thing corporations can’t do — yet, anyway — is vote, things are going to get worse rather than better. We desperately need real financial reform now, the kind that restores rules that worked through most of the 20th century and not the kind so riddled with loopholes as to be a gift to the financial services industry. We need insurance reform that puts more of our health care dollars to work providing health care and curtailing the abuse of patients who foolishly want the care they think they (or their bosses) are paying for, not a “reform” that forces everyone to participate in a broken system through mandatory coverage.

“I’m proud to be an American, where at least I know I’m free,” the song goes. Free to do what? Free to get involved in staged protests of issues we don’t understand? Free to loudly proclaim “facts” with no basis in reality? Free to watch propaganda dressed up as news? Free to owe everything to the companies that hire us, care for us, and mis-manage our money with no hope of anything else?

If you don’t mind, I’d prefer a different flavor of freedom.

In Closing: Roman Army Knife; “Um, because it was the right thing to do and we didn’t want any lawyers saying we did wrong later? Was the 5th Amendment repealed while I wasn’t looking?”; nice to see that we are going to count job losses more honestly, but it’s a shame that Mr. Obama will be blamed for “losing” these jobs when he merely counted Bush Administration losses correctly; I couldn’t have said it better either; at least child abuse is down!; where genetic testing and “pro-life” collide; trees are loving global warming (much more so than the polar bears); and Americans are drinking more, but we’re not paying for the Good Stuff. So, uh, maybe the price of Scotch will return to rational levels? No? I thought not.